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Story of Short Bowel Syndrome
- Leon Jordan
- We dedicate this site for our son who is a fighter and our everyday miracle! Baby Leon Jordan was born on Wednesday, Sept. 19 at 12:33 a.m 36 wks. Born with gastroschisis, unfortunately, the small intestine (which absorbs all of the nutrients for the body) that was on the outside of his skin had twisted and had died (15cm were left). He has also a micro colon which is smaller than his small bowel. After 5 months in the hospital he is finally home with us! He started using the Omegaven when he was 3 months old and it works amazing! He's bilirubin level is now noraml. On July 16, he had a surgery to revision his ostomoy and to reconnect his small and large bowel at UCLA Hospital. To all our family, friends and doctors... Thank you so much for all your support, understanding and prayers you showered to us. Without you all we wouldn't be strong as we have right now. Please continue to pray for him, it works!
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