Jordan just turned 3. He is growing and very happy boy. We celebrated his birthday with family and friends at John's Pizza. The place offer different games, rides and a buffet. Can't get enough of balloons but sure he had fun and his friends :)
My name is Jenna and I came across your site. You are an amazing, precious gift and special earthly angel. You are full of courageous, strength, determination, and fight. You are a brave warrior, smilen champ and an inspiration. You are a super hero, super trooper, and a tough cookie. You are full of life, spunk, joy, smiles, and sunshine. You have taught everyone about life, and the gift of life. http://www.caringbridge.org/visit/champ291 I love it when people sign my guestbook. I was born with a rare life threatening disease, and other diagnosis.
We dedicate this site for our son who is a fighter and our everyday miracle!
Baby Leon Jordan was born on Wednesday, Sept. 19 at 12:33 a.m 36 wks. Born with gastroschisis, unfortunately, the small intestine (which absorbs all of the nutrients for the body) that was on the outside of his skin had twisted and had died (15cm were left). He has also a micro colon which is smaller than his small bowel. After 5 months in the hospital he is finally home with us! He started using the Omegaven when he was 3 months old and it works
amazing! He's bilirubin level is now noraml. On July 16, he had a surgery to revision his ostomoy and to reconnect his small and large bowel at UCLA Hospital.
To all our family, friends and doctors... Thank you so much for all your support, understanding and prayers you showered to us. Without you all we wouldn't be strong as we have right now. Please continue to pray for him, it works!
1 comment:
Hi Leon
My name is Jenna and I came across your site. You are an amazing, precious gift and special earthly angel. You are full of courageous, strength, determination, and fight. You are a brave warrior, smilen champ and an inspiration. You are a super hero, super trooper, and a tough cookie. You are full of life, spunk, joy, smiles, and sunshine. You have taught everyone about life, and the gift of life. http://www.caringbridge.org/visit/champ291 I love it when people sign my guestbook. I was born with a rare life threatening disease, and other diagnosis.
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