Fever!

Jordan was admitted to the hospital yesterday because his temp was 101.09! It was higher than the last time he had fever two weeks ago. I phone Dr. Boamah and I was advised to take Jordan to the PICU East as soon as I can. I have a feeling that he might have an infection, he doesn't have any cold or caugh so theres a possible.
Today, our doctor says that the blood draw pre-result is showing a positive but will have to find the answer tomorrow after 42 hrs. Jordan is doing good and still a happy baby. Doesn't look like he's sick. He's on anti-biotic to stop any bacteria or virus. I think we might have to stay here for a couple more days.
We'll keep posted everyone. Please continue to pray for Jordan's recovery. Thankyou

7 months and we have so much plans for him.

Jordan just turned 7th month old last Apr.19.  We celebrated it with a dinner and a cheesecake (yummy).  Each time we celebrate his birthdate month I thank God for his wonderful blessing that we have our son in our home. Although we are still adjusting in our daily life with him I still feel blessed and fortunate that he is doing good and growing big.

Our next plan for his treatment is to get him evaluated by one of the best transplant hospital in the US. One of the list we have are Nebraska Medical and UCLA Medical. Our insurance approved both of hospital and they're just waiting for us to decide which one we want to go. We talked to our GI Dr. Boamah about choosing the right one and asked her if she can help us, to be honest we are unsure of which hospital is the right and best for our son. Base on my research, Nebraska had done so many intestinal transplant and has the highest rate of  survival. UCLA is the best hospital in the California and they are actively doing an intestinal transplant. 

We will find out this week and hopefully we could start  setting an appointment for evaluation. I am thankful that we have the best insurance for our son who help us so much.  

 

March of Dimes

Happy Day!

Getting ready to march

Ready get set go!

Ah what a beautiful day to go the park today...so went to our first March of Dimes in Balboa Park. George and I had been wanting to take Jordan to this park because it's really beautiful and finally we did. The weather is warm and sunny.
We decided to put Jordan in Bjorn so he could feel like he's walking too. A lot of mother and babies were there and we saw couple of parents from the Naval Medical NICU stuff, so happy that their babies are finally home with them.

Home finally!

We finally learned how to use this blog and wait can't to share you all our everyday miracle with our son Leon Jordan. He has been home with us for almost 1 month & a half. Thankfully we adjusted very well and learned all the medical care he needed everyday plus with the help of our home care nurse makes our life little bit easier.

Leon Jordan is now 7 months, 11 lbs and 16 oz, 24 inches and his bilirubin level is 1!. We are proud to say that he is growing well mentally and physically, he is learning so much things like laying down and grab his two feet and move side to side (they say he might crawl soon). He loves to stand up and seat. So much to say but this makes us proud and excited, seeing our son growing and health!

We actually created an old website for him during our time in the hospital (5 months since birth). We wanted to move it here since we decided to use this as his main website, but I think it's better to keep the original. If you like to read the previous blog we did and learn some information regarding on his development and treatment he had previously please click or attach this...

www.leonjordan.multiply.com