A Cup of Comfort

"The LORD is close to the brokenhearted; he rescues those who are crushed in spirit."

Psalm 34:18

Happy 9th Months!!!

Jordan turned 9th months old last Thursday of 

 the 19th. We had dinner at the house and celebrated it with a slice of cheescake. 

JOrdan is in crawling position. He is getting to learn to crawl. He loves to roll around and trying to stand up. 

Happy 1st Father's Day Dada!!! I love you

Last Sunday Jordan had a fever of 100.4 . After church we head back right to home and packed our bag to go back to PICU. After 48 hours of blood draw it came back negative for infection. Thank God. We came home the next day and we started the MUD treatment right away. Since then Jordan ostomy output has been stable and he's doing well and gaining weight. 

Jordan first time to play at the pool...he loves to kick his feet in the water. 

Well after 5 hours of being outside,  I checked his temp and he was hot! around 99 to 100. So I got a little scared and my husband told me that he might be too hot because of the weather. Yes he is right, as soon as I gave Jordan a nice bath and turned on the AC and put cold wet towelet on his forehead and put him in sleep, his temp started to go down at 98 to 97. Just to make sure I kept checking his temp and after two hours it went back to normal temp. haaayyy...It was too hot that he got dehydrated, his diaper wasn't even full after 5 hours from hooking up from the TPN. 

Here's Jordan trying to walk with daddy. We were at the Farmers Market in Otay Ranch

A Cup of Comfort

"I will be your God throughout your lifetime-

until your hair is white with age. I made you, and I will care for you. I will carry you along and save you."

Isaiah 46:4

He's growing bigger

Two teeth coming out together!

Ahhh the most important thing in the world his pacifier

Smile my baby :)

Jordan is now 14 lbs and 2 oz. He gained 8 oz in a week yehey!!! and he's 25 inc long. I am really happy about his weight right now. Finally is he on the right track. We stopped giving him anti-biotic since last sunday and looks like the bacteria had been treated, he is doing so well! His output seems to be stable low even though he's not getting any Flagyl or Actigal. Our GI will be giving him a new type of anti-biotic that will go through his g-tube and we will start on monday for 14 days (Collistin, Nystatin, and Tobramycin).

We took Jordan on the theater for the first time today. We saw Kug Fu Panda and Incredible Hulk, he did really good surprisingly, he was quiet the whole time and just watching. 

I think he like Indredible Hulk  better than Panda. He took some nap at the end of movie. By 5:30 it's time to go home ad hook up his TPN. And now he is asleep quietly getting more bigger. 

Baby Shower at our church welcoming Jordan!

Last Sunday, our church Nazareth Parkway Hills gave Jordan a wonderful Baby shower party to celebrated Jordan's coming home. He is so happy to received all the presents and all the meaningful cards. The food are great and we had some fun games too. I also got the chance to meet all the our church members and to know them well. Since from the start these are one of the people who really care about Jordan. They always keep Jordan in their prayers. They have done so much help and support for me and George especially our time when we're in the hospital.  

Thank you to all of you for the wonderful event you gave us. Your prayers are so powerful that our son is home with us and he is doing great. 

Yummy cake 

All the beautiful mom and girls hangout and having fun 

Thank you Allyson for planning and hosting the party. You have a magic touch :) 

Weekend

Here's Jordan enjoying the sun in the patio with his toys.

9 am playing in the patio to catch some sunlight

Saturday having lunch at Fred's in Old Town

Hmmm I think I want to drink these...

Old Town Martket

Did I hear "Dada"...

During bath time Jordan was all smiling and kicking when all of a sudden he said a word that something new "dada" with rrrr and high pitch note at the end. I was like did you said dada? and yep he said "dadada" and Im like rrrdadada  and he goes dadada... I got teary  eye and joy! Oh my gush he is such a smart boy!

This after noon we went to see our GI doctor, finally Jordan is back on gaining weight. Im so happy he gained almost 10 grams in a week, he's now 13 lbs and 10 oz. getting close to 14 lbs wooohoo!!! and he is 25 inches. No wonder his clothes got smaller. Our GI added more calories on his TPN, I guess he need it more because he's more active. We also did talk about our plans going to ULCA. Our doctors in UCLA are still waiting for some documents from our Naval doctors but they said that we don't have to wait long enough and we will be going back to LA soon, possibly before the end of the month. Also they wanted to make sure that UCLA pharmacy will allow Jordan to use Omegaven while inpatient. To be honest, we really wanted to get this thing done and head to UCLA now to fix Jordan ostomy. Jordan ostomy bag keeps licking a lot now because he moves a lot and the fistula between his ostomy and gtube keeps opening and thats how the leek start. I tried different ways to keep close and seal and I even tried to put small bag on the fistula so that way whatever the leek from ostomy some of it will go to the fistula bag but it didn't work. It'll be so nice if Jordan doesn't have any ostomy, I can put any clothes on him withour worrying about the stain or leak.

Anyway, this Sunday our church Nazareth Parkway is going to give us a  baby shower to celebrate Jordan's coming home. I am excite about it and also this Saturday we will be attending the NICU reunion to meet and see all the babies that have been in NICU before. A lot of them are premies and Jordan is the only one with a short gut syndrome so they're all gonna be amaze once they see him :)