Bye old catheter, hello to new line yet

The past few days Jordan temperature have been stable, no high fever for 3 days so we are thinking that the yeast is actually going away. Yesterday, he had a blood transfusion and after 4 hours of transfusion he got a fever of 103! Doctors ask for blood culture to check if the blood transfusion causing the fever but this morning the test came back positive for the fungus bacteria. It is still in the blood and sad to say it grew to his catheter line. Doctors been trying to tell me that they might replace it soon but Im not expecting its going to be today. We are supposed to wait for one more week before they decide to replace it but because Jordan had a fever yesterday its clearly that the anti-biotic he's receiving is not enough to kill the yeast.

The plan today would be remove the old broviac catheter and just give him a PICC line. Wait for couple of weeks to heal and kill the yeast before they place a new line, maybe about 6 weeks. Meaning we might go home without a broviac line and instead a PICC line. The first thing I thought about is since Jordan won't have a broviac line, we can give him a real bath in a tub and he can have a chance to play in the water...yoohooo! Now we are excited to go home.

Now back to reality, Jordan had his broviac line removed today at 2:30 pm, we got the chance to walk with him all the way inside the O.R room, he was playing and looking around. Once the Doctor started giving him the medicine to sedate him I can see how he started to fall asleep and still trying not...looking at me and then he closed his eyes holding my hand. We gave him a kiss and me...oh gush I feel like this is our first time in the O.R, ( about 3 times) I have tears all over my eyes... Im just really stress and can't believe he's going back to O.R again and he's gonna have another broviac line. Geoge told me that it's about time to change it anyway cuz he had at least 4 line infections(came from the gut) and he had broviac line since he was 4 months old. We are so careful on caring his broviac line, as much as possible we want to keep this line as long as he need it. After one hour the nurse came out and she told us that the IV line on his hand came off literally so they have to do another line since Jordan will be needing it. I said ok since he is sleeping. OH gush another one... this time they put on his right ankle. He did really good after the O.R. He was smilling at me and a little bit sleepy. He slept for two hours after he woke up, there he is full of life. Standing up and crawling around, about 8pm while we were having dinner, Jordan was lying down in our bed when I noticed there's blood all over his legs and as soon I search where it's coming from...its from his new PICC line. The line came off literally! We called the doctors and they told us they don't have a choice but to take him back to O.R and put another line. This time it's going to be on his groin like in between his thigh, they really have to sedate him. Finally after an hour and a half he is back to our and was crying loud. I think he is really mad. It's so hard to put in sleep and he feels very unconfortabel with the wrap on his legs.

Another plan came up now, we need to have a least 5 negative blood culture before they change his anti-biotic to much lighter (the one he is getting is very strong). We will wait for 14 days before he gets his new broviac catheter. I talked to our GI and told her that would it be possible we can go home before his birthday and she said it is and keep the date we have for his party, which is on the 21th of Sept.

We are so tired right now. Please keep your prayers for our son that he will continue to fight and get better very soon. Thank you to all!