Story of Short Bowel Syndrome: We saw poopy!!!

Our prayer had been answered! Yes, he finally poopy today! Awhile ago while I was busy preparing food for George's birthday. Jordan was really fussy, he won't seat on his swing or even play or hangout with other people, he just want me. So I decided to take him up to his room and change his diaper. When I grabbed him I kinda smell something and it stinks and Im thinking "did u poopy Jordan?" hmmm well maybe its something else and when I changed him I was surprised when i found it on his diaper. I called George immediately and showed it. We look like we had won in the lottery for excitement, we were dancing around wheee! This is the first time since he was a month old, of course it is a good sign that his colon is working right! A wonderful gift for daddy's birthday hahaha.... good job Leon!!!

For the past weeks, we've been busy hanging out with our families in L.A. Leon anxiety with stranger or unfamiliar face are really not so good. He cries and get fussy, he just want me or daddy but sometimes he just really wants me. I am not happy about it because I can't leave him or I can't do some errands. Some tricks we do sometimes so he get familiar with the other person is we play with him or we introduce the person who wants to hold him like his grandma or papa that way he could feel safe but sometimes it doesn't work, he knows right away if its different people. He will cry like he sounds like he is in pain :(

Last Friday, we came back to UCLA for his follow up check up. Everyone are happy to see him and also Dr. Farmer , he was impressed to see Leon wound had healed quickly but he is not impressed with Leon Ostomy. Unfortunately it is a little push out and every time he cries it push out a little bit more although it doesn't look bad like before but we still get crazy and frustrated sometimes when Leon cry so hard. Dr. Farmer said the good thing about this is you can push it back in and the best time to do it is when he is sleeping. Hhhmmm we never thought that before but we will try it when the ostomy got push out more. But right now we are not

touching it. Another down side is of course the never ending change of ostomy bag. I really hate it when I run of supplies, its so hard to keep his bag sealed on his skin. I've tried probably 6 different bags and yet the best one is his newborn size bag (ref 3778). Sometimes though the bag stay at least a day or two depending on how much he move and play. Oh well in regards of his ostomy supplies I really need to change the amount of items of ostomy bag he is getting and I will call the health care provider tomorrow for follow up. We will see Dr. Farmer again in about 6 weeks.

Anyway, tomorrow we have a check up with Dr. Boamah. She is excited to see Leon and his new site of ostomy. I am excited too because we are going to weigh Leon and talk about new foods for him. Hopefully he will be able to try something new and may increase his feedings too... cross finger. Oh yeah last night while unpacking his clothes I decided to put away some of the small ones and put it on the upper cabinet when suddenly I found some big bags full of his old clothes, when I opened it, it was his preemie and newborn size clothes and suddenly I got teary eyed. I was just thinking of how small he was and these are the clothes that he wore when he was still in the NICU. I can't believe my baby is growing so fast :(. Fra

nkly I treasure each day with him especially our play time together, when I bath him, when he try to impress us with his new stunts which is by the way he could seat up by himself now and crawl at least 2 to 4 steps ( thank God not all the way just think about his bag would be left out). I don't want to miss a thing (like they say). I love when I put him in sleep, it is the sweetest feeling, hug and humming a song to make him fall asleep. I love just every moment with him. By the way our little champ will be turning 1 year old next month unbelievable!!!