We are home and Jordan is the Iron boy!!!

Good Morning!!!

Look at my hair...messy :)

Hehehe....

Jordan and the Iron

Thank God, infection had been cleared out but Jordan will continue to receive antibiotic at home so we have ano

ther medication added to our list. He will be getting Gentimacine and Amphiciline. Last Wednesday, our GI doc decided to give Jordan a Iron instead of  getting a blood transfusion. He did  very well and did not developed any allergies so I think our doctor will give him Iron every once a month from now on and that way it'll help his red blood to build 

more. 

Jordan alertness is getting better than ever, if you look at him he doesn't even look like he's sick. He is so active and now that he knows how to roll...gush its scares me sometimes because everytime he roll back from tummy he will arch his back and go up and push himself forward and when he is on his tummy, he push himself backward instead forward like crawling, but I think he might crawl too soon! with all his new acrobatic thing makes his wires go tangled and thats scary! so I have to make sure wires are all in placed. To all short g

ut parents, you are welcome to share us your tricks  on keeping it in place :). 

Anyway, we came home last Thursday and we are very exhausted but glad to be home again. We missed our bed and Jordan missed his cribs too. We had our home care nurse to help us to give his all new medication. Later at night while Jordan sleeping peacefully, I noticed his g-button is leaking a lot than usual and his onesie shirt is so wet in the front (I thought his ostomy bag had leak) so I changed him and put back to sleep. The next morning, Jordan is soaking wet and I check it and found out his g-button is leaking  a lot and his ostomy bag is empty which is surprisingly i haven't drain it since the last time i checked him...hmm something is wrong. So I decided to call our Pediatric Dr. Rose and she adviced me to go to PICU so she could check his g-button. After 30 minutes we are back to PICU. They did an xtray on his stomach to see if the g-button had disloged but the resulted of xray g-button look fine and it is still on the right placed. The doctor decided us to stay over night so they could monitor his stomach and hoping his output would go back to normal. Ahhh we haven't had enough rest and we are back to PICU again...well I guess its better than worrying about something there might be wrong if we stay in the house. Few hours after we admitted, his g-button stop leaking and his ostomy output is back to normal. Doctor said previous infection probably caused it and while on antibiotic. Another reliefed, we can discharge the next day and I made sure to the nurse to discharge us early in the morning and she did. We left at the hospital today at 12 noon.