Happy 4th of July

 What a long weekend in the PICU! Yes we just came home from PICU. Last Friday we are so excited to take Jordan at Coronado to watch the fireworks with him for the  first time. This is the same place we go every 4th of July, just hangin out and have a picnic with friends. Anyway, Jordan was having so much fun, after I gave him  his last bottle for the day,after 15 minutes  he started shaking and threw up all the milk. So we guessed the fever is coming and he must have caught a bug since we were sitting on the grass and it was 6 pm. Jordan usually home by this time and resting. We placed him on his stroller and he fell asleep after I gave him a massage on his feet to make him feel better and we wrapped him well. After an hour his temp came down and well as usual he is smiling again. He watched the fireworks for the first time and he loved it so much! He was amazed with all the lights and sounds. After the show, we headed straight to the PICU and they started to draw blood. After 24 hrs the culture came back positive. Jordan has the same bug called E. Coli from his intestine that grew back to his line. This infection is really scary and can could kill him. It frustrates us because it normally grow from his intestine and we can't do anything to prevent it no matter how much we are careful with his line. Jordan intestine doesn't have a mortality to block it as being a short gut though Dr. Boamah says this can be treated with some medicine just like the one we did few weeks ago (MUD Treatment) and since we only did it once we are going to continue to use it every 3 weeks, this will help to clean out all the bacteria from his intestine.  I noticed after the MUD Treatment his ostomy output has been low and our GI doctor is happy about it so she decided to increased his feeding. He is getting 15ml per bottle 3 times a day and 5ml continues feeding, also he can have more than 1 ounces of greenbeens. His weight is going back on track again, 15 lbs and 80z . 

At the Coronado Ferry Landing

With friends

Here he is first time he pulled by himself up!

Home  finally and he is crawling like a lion!