Thursday, October 16, 2008

Feeding Tube and backpack

The past few days we've been trying to keep Jordan's feeding tube stay connected on his g-tube. As he grow he is getting a little more curious and just loves to cruise around the house. Every time the tube came off I pick it up right away and I clean the tip of the tube with the alcohol pad before connecting it back to the g-tube, its just one way to keep any germs away. We had tried to put a tape on the tube so it holds better but it still doesn't work so we decided to connect the tube from the top of his shirt that way he won't step on it when he's cruising, and it worked! Two days ago, while disconnecting Jordan on his TPN. I had an idea of putting the backpack on his back with just the milk pump (really light weight) just to see how he would feel. At first he didn't move and he was just sitting on the floor, maybe he's trying to figure out what's on his back. Then a little while he started crawling until he grabbed his push toy and started to walk around the house. He likes it and he look good on the backpack and the feeding tube is stayed connected without pulling off.

First time with the backpack on


We will wait though 'till Jordan get a little bit bigger and really be able to wear the bag, maybe when he started to walk.

Last Thursday was the last day of dose of his antibiotic so we are back to normal hours of TPN. So glad he had more free time to play without worrying the TPN tube. We are going to keep bumping up his feeding every Monday and Thursday. Right now he is at 12 cc per hour plus 15 cc of bottle feed 3 times a day. He is also eating good food with the total of 1 ounce a day, I do give him at least 2 spoon every feed. He likes green beans, sweet potato and butternut squash. His ostomy output still good with the average of 370 the most. No sign of bacteria overgrowth. He is teething again, although the tooth on the top hasn't really come in yet, hopefully it will soon.


2 comments:

Anonymous said...

I remember our first backpack day...oh he did not like it! We remind him, he is like Dora and Diego and he buys that story! Love the new haircut. go Leon go!!
Katrina
www.caringbridge.org/visit/ryannagy

Leon Jordan said...

Thank you Katrina. Im so happy Ryan is doing so great. God Bless you and your family!
Jacky