Happy Halloween!!!
Jordan enjoyed playing with dada while checking out all kind of pumpkins. He also got the chance to ride a train with me.
Story of Short Bowel Syndrome
- Leon Jordan
- We dedicate this site for our son who is a fighter and our everyday miracle! Baby Leon Jordan was born on Wednesday, Sept. 19 at 12:33 a.m 36 wks. Born with gastroschisis, unfortunately, the small intestine (which absorbs all of the nutrients for the body) that was on the outside of his skin had twisted and had died (15cm were left). He has also a micro colon which is smaller than his small bowel. After 5 months in the hospital he is finally home with us! He started using the Omegaven when he was 3 months old and it works amazing! He's bilirubin level is now noraml. On July 16, he had a surgery to revision his ostomoy and to reconnect his small and large bowel at UCLA Hospital. To all our family, friends and doctors... Thank you so much for all your support, understanding and prayers you showered to us. Without you all we wouldn't be strong as we have right now. Please continue to pray for him, it works!
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1 comment:
Hi my name is Ana and have a daughter named Adriana who has sbs. I stumbled upon your page and had a question. So your son has only 15cm of small intestines and a very small piece of his colon? They reconnected him right? so when he goes to the bathroom is it liquid y? I just wanted to know my daughter has 45 cm of small and a tiny piece of her large and they said they might never be able to reconnect her, but she has always been liquidy since her surgery.If you could email me that would be great lilelmo8885@att.net
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